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NHS Tees Valley CCG is carrying out a twelve-week period of patient/public engagement (17 May – 6 August 2021) to understand the views of those who have supported a loved one with a long-term condition or cancer during the end stages of their life.

The purpose of the engagement is to look at how services provided to people who are in the last months of their life, known as end of life and palliative care services are currently delivered and what can be done to improve them so they are patient centred, offering individuals and their families access to collaborative, co-ordinated care.

This work is part of a pilot in the Tees Valley area (Middlesbrough, Redcar and Cleveland, Hartlepool, Stockton-on-Tees and Darlington) by NHS Tees Valley CCG to develop a co-produced strategy for Palliative and End of Life Care (PEoLC) alongside local partners, patients, parent carers and service providers that will guide a transformational programme.

This briefing is specifically in relation to the provision of adults services, however they would also like to engage with families and partners regarding Specialist Palliative End of Life Care for children and young people and will organise separate engagement approaches for this audience which they will communicate shortly. They are seeking to implement seamless care for this group, particularly for those negotiating the transition into adult services. This work will enable this area to be further developed, building on established relationships between children’s services, two specialist children’s hospice facilities and adult palliative care.

They are hosting a stakeholder workshop for the ADULT work on Wednesday 7th July 2021 so please SAVE THE DATE and they will in touch soon with further details and how to register.

They are inviting members of the public/service users to get involved in the engagement by completing an online survey  (paper versions available to download on the CCG website).

Note: Please be aware that this survey is specifically looking for viewpoints of adult end of life experiences; for children and young people’s services, we will be running a separate survey in due course.

The survey will run for eight weeks from 17 May until 9 July 2021, they will then analyse the responses to develop themes for workshops and co-production as well as a series of one-one interviews.

The patient/stakeholder feedback will be independently analysed and a report will be produced which will be made public via the CCG website later this year.

For any additional information about the End of Life, Palliative Care review please contact:

Name: Beth Roberts
E-mail: Bethany.roberts3@nhs.net
Tel: 07825 020426

All information regarding the End of Life and Palliative Care engagement is available on the NHS Tees Valley CCG website